Please join us Friday evening May 11th for OLIVIA's NIGHT, a great evening of fun, food and music featuring the band Sugahbeat at The Duce while raising funds for MLD research and family support.
Featuring great music,a silent auction and raffle, great food and drink, and plenty of fun for the whole family, we'll raise money for the MLD Foundation and have a fantastic time celebrating our sweet Olivia, who would've been ten years old on May 17th.
Do you have an item or service to donate to the silent auction or raffle? Please let me know!
As always, thanks for your support.
See you on May 11th!
Christine & Eric Hoffmann
Who is Olivia?
Olivia Hoffmann passed away peacefully December 2010 at age 8 1/2. She was diagnosed in 2004 at the age of twenty-seven months with Metachromatic Leukodystrophy (MLD) and spent the last 6 years fighting a battle that made us all proud. Olivia left behind her parents, Christine (Gootjes) and Eric, two younger twin brothers, Carter & Will, and a host of loving aunts, uncles, cousins and grandparents.
Less than a year after diagnosis MLD, a rare terminal neurometabolic disorder caused Olivia to go from a healthy, smiling, bright-eyed little girl to a child who can no longer control any movement, talk, eat (she's fed through a feeding tube), see, or even smile. You can learn more about Olivia here.
Who benefits from Olivia's Night?
The MLD Foundation is a non-profit 501c3 serving MLD families, increasing awareness, and influencing research for metachromatic leukodystrophy in the US and around the globe. 100% of the funds donated go to the MLD Foundation and are fully tax deductible. Register/donate online or make your chack out to the MLD Foundation - you will receive a receipt with the details of your donation. Learn more about the MLD Foundation here.
What is Metachromatic Leukodystrophy?
Featured Olivia's Walk SponsorMetachromatic Leukodystrophy (MLD) is a rare terminal neurometabolic inherited disease. People who are affected by MLD lack an enzyme in their blood called Arylsulfatase-A, (ARSA). Without this enzyme, sulfatides are NOT broken down and instead build-up in the white matter of the brain and the rest of the body causing destruction of the myelin sheath (demyelination). Without an intact myelin sheath there is a breakdown in communication between the nerves and the brain resulting in a progressive loss of physical and cognitive skills leading to early death. There is no cure yet, but with increasing research there is hope!
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